new treatment plan

Mili pratele,

Dear friends,

Vzpominate si na skolni leta, kdy ti, jejichz jmena se objevila na stole reditele skoly, byli asi v peknym prusvihu? Tak to je presne ten pocit, ktery mam ze zprav, ze se dnes sesli spicky vedeni UHKT k probirani meho pripadu.

Do you remember back in the school days, that when your name was on the desk of the school master, most likely you were in trouble? I have exactly the same feeling about my case being brought to the highest in authority in the IHBT (my hospital).

Nemuzu si prat lepsi odborniky k posouzeni meho pripadu. Jak jsem psal uz v utery, je tezke si vybirat mezi transplantaci a chemoskou putujici pateri do mozku, ktera by mela najit a zabit tu jednu kmenovou bunku, ktera si uz dva roky hraje na schovavanou. Dneska uz vime, ze transplantace nebude potreba, protoze by nejspis vubec nic nevyresila. Tady ale dobra zprava konci.

I couldn’t ask for a better doctors to review my case. As I wrote on Tuesday, its hard to figure out what to pray for – is it better to have a transplant or not to have transplant but some chemicals running thru your spine to your brain looking for a stem cell that is playing hide and seek for two years now? Well, today we got the answer. I am not going to have a transplant. That’s where the good news ends.

Druha strana je o neco vaznejsi. Neexistuje zadna klinicka studie, odborna literatura ani nejsou dokumentovany jine pripady nez pripad jedne pani se stejnym druhem leukemie, ktera po dvou transplantacich byla testovana stejnym zpusobem jako ja dnes .

The other side starts to be more serious. There is no protocol, there is no literature, there are no documented cases other than of one lady, who was tested the same way I was tested today because even after second transplant her leukemia came back.

Pocinaje zitrkem do odvolani budou dve ruzne latky utocit na vsechny kmenove a zmutovane bunky soucasne – jedna na ty v krvi a kostni dreni a ta druha v mozkomisnim moku.

So starting tomorrow for however long it takes there will be two attacking drugs destroying the bad cells in the blood and bone marrow, while at the same time some other chemo is going to go thru cerebrospinal fluid into the brain.

Az dojde k uplnemu vymlaceni tech spatnych bunek ,pujdu si polezet do nemocnice a bude mi podano nekolik davek silne chemoterapie, po ktere pujdu na ozarovani. Pak uz snad bude konec.  Jak jsem uz rekl, tohle je plan, ktery byl dneska schvalen, nejede se podle zadne tabulky jako doposud. Jediny vysledek je ta pani, ktera uz je rok v remisi, takze je o dost dal nez kam jsem ja dosel za posledni dva roky.

The plan is that once the result of all of these three fluids will be negative, I will be admitted to the hospital for a series of very strong doses of chemo and for the big finale – radiation. As I said, once again, this comes with no guarantees as there is no protocol or clinically proved testing done on this particular way. There is one lady, who has had a remission for one year now. That is farther than I have been in two years.

Mam plnou duveru v meho doktora a jeho kolegy, kteri se o me vytecne staraji. Priznam se, ze jsem nervozni z predstavy ze jsem pokusnym kralikem kdyz mi jde o zivot, ale zase je tu realita, ktera je prosta – zadne jine reseni neexistuje. Nic se pro nas dnesnim dnem nezmenilo, porad zijeme s koncem na mysli, at uz to dopadne nebo ne. V tuto chvili prevlada radost nad tim, ze tato lecba mi umozni vice casu s rodinou. Cas na obavy z rizik bude vic nez dost.

I have a complete trust in this group of doctors who are taking care of me. I will admit that feeling like a guinea pig when you try to save your life makes me nervous, but to be all fair, there are no other options. Nothing has changed for us, we are still considering both of the possible outcomes, but at the moment the joy of less separation from my family sort of overtakes the risky business that is ahead of me.

Hned jak uvidime co nas ceka, pozadame vas o modlitby za konkretni veci. Ted prosim pokracujte v modlitbach za uplne uzdraveni a silu pro prekonani vsech tech testu a chemoterapii tak jak jsou v planu.

Once we tap into those waters we will kindly ask for specific prayer requests. For now, please continue to pray for a complete healing and strength to endure all the tests and chemo as they come.

Vazime si vaseho zajmu, prani a modliteb. Moc nas to povzbuzuje a vime, ze nejsme sami.

Your responses and prayers are a great encouragement to us. We know we are not alone.

martin